Information Technology and Persons with Disabilities Conference
Information Technology Week
Speech by Wai Kin Chiu Oct.
3,1992
Hello, my name is Wai Kin Chiu. Lay day ho mar? I can't talk to you in
Chinese with my light talker anymore because it's easier for me to talk
to you in English than Chinese. I brought some of my equipment to Hong
Kong and a speech to all of you. I hope all of you will like my speech.
I'll be talking about what I did the last 6 years and some of my
equipment and other things. I brought my speech therapist and her son
and one teacher to Hong Kong and they will help me this week.
Well, I have CP. I'm 20 years old but I'm still a kid inside of my heart.
I come from Seattle,
Washington.
I can talk to you with my light talker but you will have to be patient.
I use my left knee to send morse code. There are two switches by my left
knee. The morse code calls up messages I have stored. I can spell too.
Let me tell all of you about my history and later on I will answer all
the questions. I was born in Hong Kong. I came to Seattle on
3-20-83. My first school was Lowell. I did not know much English so I
had a very hard year communicating with people. In the summer of "83 I
met a speech therapist at my summer school. Her name is Janis Funk. Now
she is my god mother and my speech therapist.
We started to work together the next school year at Meany Middle School.
The first thing we worked on was how to use scanning on the computer for
communication. Believe me, it was very easy to learn. I learned it for
5 days with seeing the computer and I learned it without seeing the
computer for a week. I listened to the beats of the scanning. I liked
it. In '85 my speech therapist bugged me to change my scanning to morse
code. I did not like using it until I got my light talker in '86. The
scanning of the light talker is very slow and very hard to use. I could
not use it so I decided to use the morse code. I learned morse code in
about 5 weeks. Some of the codes were very hard and some of them were
very easy for me.
In '87 I learned about Minspeak for 2 weeks until I understood it. In
the next school year I started to go to Nathan Hale High School and I
still go there. In that year I learned how to write and read English and
I'm still learning it.
I know all of you have been wondering why I am back here for today,
right? I'm here to talk to all of you about CP and hopefully, it might
help you to understand cerebral palsy better and I'll help you to make
some new friends with other disabled people later on in this program.
Now, I want to talk about CP and other things, OK? I get startled so
easily. It's called the startle reflex. I'm sure everyone with CP has it,
and everyone hates it. Do you want to know why? Well, I hate it when it
happens because I might hit someone with my arms by accident. It happens
when someone walks in front of me from behind or walks around me or when
sometimes my muscles pop or when I hear a loud noise. I can't control my
arms, my head, my right leg. I can control my left leg, a little bit of
my mouth, my left foot. I can write with my left knee.
Of course, I have some adaptive equipment to help me, such as my
computer with an adaptive interface, and my switches and others. The
technology today is the best for the disabled people in the US and in
the United Kingdom. Many of years ago, we didn't have the technology
that we needed to communicate. We had a very hard time to communicate
with other people. The last 10 years or so we have had computers for some
disabled students for school work. Today, many disabled people are using
computers everyday at home, at work, and at schools. If we
didn't have technology
today, the disabled wouldn't be able to work with other people.
I brought a video tape of disabled children.
Welcome to my speech therapist Janis Funk. She will play the tape for
you. I'll be back in a few minutes. Janis..
Thanks Mama. She is also my god mother. So, I can't write and talk and
go for a walk without the technology and my special equipment. I wrote
my speech on a computer, not on my light talker. I can write it on my
light talker but I can't edit my speech on my light talker. My speech
therapist put my speech for me in the light talker.
Do you know how many people are disabled in the world now? I think
about four and a half per cent. I think by the year 2000 the disabled
will increase. I only hope people would make more jobs for the disabled
to do by the year 2000. The problem is the world doesn't care for the
disabled because the equipment they need for jobs is so expensive. Let's
hope that I'm wrong about that. The adaptive equipment costs too much
money because it is rare.
How many people now have some disabled friends? And how many of you
would want some. Any body? I would say that 10% of you would. How many
of you are scared of me now? I might look scary to you outside
of me but I am still a kid inside of my heart. You might like me if you
get to know me better.
I have so many friends who aren't disabled around the globe. I met them
on the
Modem and at camp. Mostly they are older than me. I always wanted to
make friends my age at school, but I was shy and nobody would talk
inside of the class and outside. They were scared of me. I didn't know
why. I was so mad and I didn't know what to do until this summer. So, I
decided to write a speech about CP and go to schools and talk to all of
the students.
I'm not shy and mad anymore because I know what to do now and I have the
power to talk to all of you.
It's easy to make disabled friends on the modem network. If you don't
have one, you can make disabled friends at school or out there anywhere.
Just say hi to them. Please try to make some disabled friends. They need
some friends like you. You never know, you might learn something from
them. That's all I have to say.
Any questions?
I want to thank you for having me here today and thanks to Janis for
helping to put my speech in my light talker. And thanks to Barry for
helping me this week. I also want to thank Mr. TK Kang and Ms. Lydia
Chan for my trip to Hong Kong.
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